Tomorrow is the opening of a music and art event to help raise funds and awareness towards a disease called ALS Amyotrophic lateral sclerosis but perhaps better known as Lou Gehrig’s disease. I did not know too much about this disease until my Father got it a few years ago. I watched my Father slowly deteriorate, but I don’t think I ever really believed he would die.
It began with the muscles in his foot failing, then it moved up his leg until last year, after falling for the third time, he decided to remain in bed. My father was a very active man and was always rushing around laughing and causing mischief. To me he was much like this bird. Flying, making song and forever on the move until suddenly a string catches its foot. It gets more and more trapped until eventually all is taken from it. It is a vile disease that immobilizes the body yet leaves the mind intact. I would come visit a few times a week and we would laugh and joke and pretend nothing was wrong. My father now lived in a hospital bed in my parents living room. My mom sleeping on the couch beside him at night. There were metal arm bars to each side of his bed and my father would say as I was about to leave after visiting “Oh it’s too awkward to hug over these bars lets just shake hands” I wanted to hug him each time but I didn’t because that is what he wanted. I don’t know why I agreed to do this because it was so informal and strange. I never did hug my father again as, last month, he got pneumonia and died in the night.
Here is the slurl to the event http://maps.secondlife.com/secondlife/Sand%20Storm/133/141/3906
Previously posted by at Bryn Oh. Visit http://brynoh.blogspot.com/2016/02/music-and-art-event-for-als.html for original post.